We are a group of Cystic Fibrosis (CF) Patients and Caregivers that are concerned for the future access to our medications, and the next generation of CF care. Where no one is left behind, or loses access to the medication that is working for them.

CFUnited is a Grassroots Organization that receives ZERO profits. We are all passionate volunteers that formed in response to the Colorado PDAB (Prescription Drug Affordability Board) putting Trikafta (our life saving medication) up for review in 2023. We formed to unify and amplify our voices.

We are the Independent Patient Voice. Our grassroot movement had supporters across the nation during and after our PDAB review.

We have continued our advocacy efforts involving policies in Colorado and abroad that could affect our access to treatments and further create barriers to our quality of life.

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